Medullary Sponge Kidney
Based on the very latest information, Medullary Sponge Kidney is a rare, likely inherited, congenital condition that typically manifests with nephrocalcinosis, nephrolithiasis and/or pyelonephritis. Macro- and microhematuria, renal failure and hyperparathyroidism can also occur, though less frequently. Recent research has shown clusters of MSK cases within families which indicates there is, at lease in the familial cases, a genetic cause of the disease. It is commonly believed MSK is a benign disease with few complications beyond frequent UTI, bladder and kidney infections. However, recent research suggests that there is more than one form of Medullary Sponge Kidney. One form where patients have a higher incidence of kidney stone but few other symptoms and a second even more rare form that causes the patient chronic pain. Researchers do not know why some MSK patients experience pain.
Symptomatic MSK patients who experience chronic pain also report chronic fatigue, chronic exhaustion, low stamina, weak immune systems and frequent insomnia. MSK patients also report very high rates of anxiety, depression resulting from a lack of understanding and support for their condition. A lack of knowledge and understanding among doctors seems to contribute to feelings of helplessness and despair. For Medullary Sponge Kidney patients who experience symptoms, it is important for their mental health to connect with others who also suffer from their disease. On line support groups, when populated with compassionate members are reported to be invaluable.
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